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Collecting funds for Debra

January & February 2018

The Koppel Project Baker Street

‘My longer stay’

Interview with Amir Shaikh from the Downshire Golf Club

DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal.

Epidermolysis Bullosa (EB) is a group of genetic skin conditions which cause the skin to blister and tear at the slightest touch. Those born with EB have skin so fragile they are called ‘butterfly children’ – their skin is quite simply as fragile as the wing of a butterfly.

DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had EB – the charity was the world’s first EB patient support group. DEBRA is now international in scope with sister organisations in 40 countries, a worldwide research programme and strong clinical and nursing services.